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2020年6月30日火曜日

Nerve flow and numbness in the hands

This article is a translation of an article written in February 2014.
Three days ago, there was a crisp sound of nerves in my shoulder（※refer to "今日の神経の流れる感触（2/3）", but sorry, it's written in Japanese）, and for the next few days, the nerves in my shoulder area were accelerating.

And when I was on the train back home today, I raised my hand and was holding on to the railing, but after I dropped my hand on the way, I was attacked by more intense nerve flow and more severe numbness than usual. Such a numbness in my hand lasted for more than 30 minutes.

I did some research on "numbness".
I checked it on a Japanese site, and the numbness（痺れ）page of Wikipedia had the following description.
  • When the blood flow in the blood vessel is stopped for some reason, the central nerves and peripheral nerves are damaged, so the phenomenon occurs such that having a limb 'fall asleep' or continuing an abnormal sensation of being constantly given an electric shock.
  • Basically, it can be considered that numbness can easily occur if there is nerve compression or blood flow disorder.
  • Carpal tunnel syndrome is highly suspicious if it involves only the first to third fingers, which are the areas of control of the median nerve.
As I wrote in the previous article about "Symptoms similar to carpal tunnel syndrome after reversal surgery" and "About the "feeling of nerve flow" that I feel after ETS reversal surgery #09", my numbness in my hand is centered around the entire palm, or the thumb, forefinger, and middle finger, and I think that the nerve that feels a violent flow to connect now is the median nerve in the arm.

However, there is a slight difference between the numbness description on Wikipedia and my feeling and what I think about it.

It is written on Wikipedia that nerves are damaged due to blood flow stagnant. However, I feel that the numbness in my hands has nothing to do with blood flow and is due to the intense flow of nerves.
I think that it is the same that numbness occurs when I sit down seiza-style.
It means that blood flow may be hampered by sitting down seiza-style, but nerve flow also will be hampered from the broken knee to the tip. In particular, my nerves are flowing violently in my toes when I stand up, which, I think, may cause numbness.
The reason I can think so is that I once had a lumbar sympathetic block (LSB).  It is to block the nerves that go to the feet by alcohol, but that alcohol was only effective in about half a year.
When I felt the moment when the effect run out, I clearly felt the nerves slowly flowing from my waist to my toes.

I think the reason why my hands don't connect in that way is that there is a part that was withered and stopped abound the shoulder. However, it is gradually recovering.

I went off the track a little, but what I wanted to write here is that I think that the numbness in my hand is due to the feeling of nerve flow, and it's occuring like a flow of water in a hose rather than a flow of electric current.

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2020年6月28日日曜日

Switching my body from winter to summer

Recently I had intense drowsiness in the daytime, but now it seems to have been cured.
I used to take a nap everyday because it was so terrible, but there are days when I don't have a nap.
However, because I am caring for my parent, there are days when I cannot enough sleep at night. I take her to the bathroom every 3 hours during the day and night. Since I spend such life, I have a day when I need a nap.

My unexplained back pain somewhat subsided.
I have a few more days of prescription left, I don't think I'll have to go to the hospital to get more.
I have a lot of poultices, so I will use them as appropriate for the time being. As I wrote before, it's also useful to get a coolness when going out.

Perhaps it is a reaction, the current feeling of nerve flow is quite intense. It's not painful, but it can be numb. However, when I lie down with a futon, I also feel a strong feeling, which makes me sleep well.

These are probably the effects of the recovery on the right side, which has been continuing since two years ago, but maybe there is also a seasonal effect that my body is switching from winter specifications to summer. Also, I used to have oppressive feeling and depressive symptom at this time of year, but it hasn't happened this year. If it doesn't happen like this, it can be said that it is the effect of recovery after reversal surgery,,, but it may be too early to say so.

Also, it has an effect on the nerves of the teeth, and I have recently been feeling a sense of discomfort in the teeth.
Yesterday, I went to the dentist and had my front teeth shaved down to make it a little smaller.
In February of this year, I also had a hypersensitivity of smell, so various effect has been exerted on my body.
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身体の冬仕様から夏仕様への切り替わり

先日まで日中強烈な眠気に襲われてましたが、治まったみたいです。
余りにひどかったので昼寝を日課にしてましたが、今は昼寝をしない日もあります。
ただ、親の介護のため夜中十分に睡眠が取れない日もあります。トイレは昼間も夜中も３時間おきに連れてってます。そういった生活のために、昼寝を必要とする日はありますね。

原因不明の背中の痛みも随分と治まりました。
もう数日分の処方箋が残ってるのですが、それを飲みきったら、病院にもらいに行く必要まではないかなといった程度になってます。
ただし、湿布はたくさん持っているので、当面は適宜使うつもりです。前にも書いたけど、外出時にちょっとした冷感を得るのにも役に立ってます。

反動なのか、今の神経の流れる感触はかなり激しいです。痛みはないのですが、痺れが伴うこともあります。ただ、布団で横になった時にもかなり強い感触があり、そのおかげもあってか寝つきはかなり良かったりもします。

これらはおそらく一昨年から続いている右側の回復の影響だろうけど、ひょっとしたら身体が冬仕様から夏仕様に切り替わっているっていう季節的な影響もあるのかもしれません。それと、昔はこの時期になると抑圧的な気分になりうつっぽくなっていましたが、今年はまだそれは起きてないです。このまま起きなければ、それもリバーサル後の回復の効果と言って良いと思うのですが、、、そう言い切るにはまだ時期尚早かもしれないです。

あと、歯の神経に対しても影響があって、ここ最近歯の違和感も感じています。
昨日は歯医者に行って、ほんのちょっとですが前歯を削って小さくしてもらいました。
今年の２月には嗅覚過敏が起きたりもしてますから、そういった感じでいろんな影響が身体にも出てきています。
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2020年6月27日土曜日

ETS surgery and Dysautonomia

This article is a translation of an article written in June 2013.
June is almost over, and summer is gradually approaching.

I am living a normal life for now. I used to worry about sweating even during the rainy season, but I haven't sweated at all this year. There are various reasons, perhaps because the sensible temperature has dropped, or because the physical burden has decreased thanks to the nerves that were concentrated in the lower body flowed to the upper body, or because feeling better for flowing the sympathetic nerves to he head. In any case, I have no worries about sweating at the moment, and I am able to carry out my activities with ease.

Since the rainy season this year, I sweated a few times enough to moisten my back while sitting in the office during the day. But I think this is the sweat that accompanies the nerve movement after undergoing reversal surgery. I think I will sweat if I walk outside during the day. But if I wear a light shirt on top of a T-shirt, I don't care of sweat at all, so I can also wear a gray color T-shirt.
Last year, I had a breathing disorder every few days, then I was sweating until it runs down my back, but that has not happened so far. But that may happen in the future.

The feeling of moving nerves gets faster each day. It may be because summer is approaching, but, than that, I think it is because the flow gradually strengthens and becomes smooth as recovery progress.
It's awkward to flow in my head.
Though it doesn't happen so these days, I may become intensely sleepy during the day. Also, my head doesn't work well, then I become "absentminded" or "distracted" situation.
The place where I feel flowing nerves is the entire area between the scalp and the skull. Do you see the nerves flowing in your head when you wake up and feel drowsy? I always feel like that.
I feel the nerves flowing in my hands, not the back but the whole palm.
I think that the capillary nerves on the head and palms where these nerves move and flow are probably like sponges, and are capable of absorbing a large amount of nerves. Actually, my upper arms and lower arms are also similar, and I think that nerves will not only sweat, but will also keep moisturized and keep protected from heat. And because the chest nerves have been resected by ETS surgery, all the nerves that should fit in the palm, upper arm, lower arm, and head are all contained in the lower half of the body, so compensatory sweating will occur at the torso.

Given the fact that the sympathetic nerves of the head have decreased, that is, the balance of the sympathetic nerves and parasympathetic nerves of the head had definitely changed before and after ETS surgery.
And as dysautonomia is said to be "a condition in which the sympathetic and parasympathetic nerves are out of balance", many people, including myself, suffer from the typical symptoms of dysautonomia, and has been diagnosed so. Sleeplessness, loss of appetite, palpitation, hot flashes, anxiety, tiredness, lack of motivation, heavy head, throat foreign body sensation, malaise...
Moreover, not only does it develop immediately after undergoing ETS surgery, but I think that the likelihood of future development will be completely different due to changing the balance of sympathetic nerves in this way.
No matter where the ETS surgery is perfomed, reducing sweating in the hands means also reducing sympathetic nerves going to the upper body, so I think that nerves to the head are also reduced.
Even if not having undergone ETS surgery, dysautonomia may occur due to stress and other factors affecting the balance of your nerves. Therefore, I am confident that ETS surgery makes it seasier to develop it.

Panic symptoms have often occurred since I started to feel nerve movement after undergoing ETS reversal surgery. However, in my case, it occurs because the nerves on the abdominal side vigorously regurgitate and move and flow to the upper body, and that is, I know that it is occuring in the process of recovery. Then, I am struck  by terrible palpitation and stuffy breath, and since I feel my nerves are moving fast, I have to sit and be calm for a while until the symptoms subside.
I've written about panic symptoms several times, but I believe it will subside once the entire recovery process is over.

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2020年6月25日木曜日

Symptoms similar to carpal tunnel syndrome after reversal surgery

This article is a translation of an article written in March 2018.
As for the commuter train this morning, my fingertips were severely numb.
Though the numbness in my dull hand while I was awake was already chronic, this morning I felt intense numbness as much as I felt with my toes when I sit down seiza-style.

I think that my right shoulder started to connect with a cracking sound, and each time I moved it began to flow and gradually began to connet, and finally the connection was smooth, the numbness transmitted became also intense.
I don't tremble today, probably because my nerves have become stronger.  And my fingertips and palms are too dry just like when I went up from the pool.

I searched for numbness on the internet.
Although not all symptoms are completely true, my numbness in my hands is close to "carpal tunnel syndrome".
・Numbness from thumb to half of ring finger
　→ That's about right. My little finger is also numb though light.
・It often happens at night.
　→ I never get numb while sleeping.
　　However, the nerves become active after waking up in the morning, which is linked to it.
　　In my daily life, I get the most numbness when I'm on a train, and more numb when I go back to home in the evening than in the morning.
・The back side of the hand is not numb. If waving the hand, it will be easier.
　→ That's right, so I'm often shaking my hands.
I think that my numbness is similar to carpal tunnel syndrome, because while I have a narrow nerve, carpal tunnel syndrome occurs when some nerve is pressed.


It is a diagram of nerve of the arm part I used in the past, which is in the Nerve page of Wikipedia.


I think that one of these yellow nerves is the reason why my shoulders were making cracking noises, my hands were shaking, and my fingertips were numb.
Not only one which I feel currently connecting just now, there are a lot which I felt having connected for more than 10 years after undergoing the reversal. There were in my left hand, in my right hand, and all over my head.

I think that because the nerve flow to the upper half of the body weakened due to the ETS surgery, the flow of many nerves has stalled. When the flow weakens, I think that the flow will not be like a thin stream, but the pipe will break and the flow will be stopped at all.
I feel that these nerves are connected one by one and regaining flow, in exchange for various reaction such as large amount of sweat in a moment, suffocation feeling like panic symptons, and unbelievable tension after reversal surgery.

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2020年6月23日火曜日

Night Sweats on rainy days, Compensatory Sweats when the humidity is high, the Relationship with 'foot sweats and panic' and 'atmospheric pressure'

This article is a translation of an article written in March 2018.
I had a lot of night sweats today. No matter how terrible it is, I won't be sweating until the sheets get wet, but the shirt was soaked.

It was raining this morning, so I wonder if that's the reason.

When it rains, the humidity rises of course, but not only that, it also lowers the barometric pressure. I suspect that the night sweat may be caused by this atmospheric pressure.

Though compensatory sweating worsens during the rainy season even when the temperature is not so high, I think this is due to humidity. It is often said that the heat and humidity increase the sensible temperature. However, I didn't feel the heat and humidity this season, and I didn't sweat during the day, so I think it's not just the effect of humidity.

In fact, my foot sweat is also affected by atmospheric pressure.
I completely stop sweating on rainy days, but the pressure is low on rainy days.
Also, I have a lot of foot sweats in winter, but the pressure is higher in winter.
Foot sweats are the worst on sunny winter days, that is, I sweat when the pressure is high.
Though I don't really worry about foot sweat because I'm getting the benefit of drionic effect, today I felt the dryness in my shoes even more because it rained.

I don't have panic symptons recently, but it was also affected by atmospheric pressure.
It was easier to panic on a rainy day, and I often panicked in places where the air pressure changed, such as in airplanes, subways, and trains.

As much as temperature and humidity, I care about air pressure.

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2020年6月22日月曜日

Relationship between "a sweating nerve" and "a sympathetic nerve connected by ets reversal surgery"

This article is a translation of an article written in June 2018.
After I had a reversal surgery, there is one thing which I didn't know when my left nerve was connected, but which I understood while my right nerve is being connected.

It means that my nerve's moving feeling occurs centered around the "armpit".

This nerve is a nerve that sweats, and I feel like this after undergoing ETS surgery.
My sweat condition is perfectly divided into upper and lower parts on the chest, with no sweat on the upper side and excessive compensatory sweat on the lower side. This is so called "split body syndrome".

The feeling of nerve flow that I have felt since receiving reversal surgery seems to be that the nerve flows from the red cross（× mark）to the upper body.
Furthermore, this nerve comes from my abdomen, but I don't know where it comes from because I have no sense.

It seems that the sympathetic nerve flowing through the arm（red lines） is necessary for this nerve to move.
However, if undertaking ETS surgery, the sympathetic nerves will weaken in the blue cross mark, so I think that all of the sympathetic nerves that flow through these arms will be withered.

So why can't I recover immediately after making a bypass in reversal surgery is that the blue (fluid) nerves above is necessary for this red sympathetic nerves to flow.
The blue cross in the neck is removed by reversal surgery, but the red nerve is still withered.

It took time to regain the activity of the red sympathetic nerves, as the fluid nerves in the blue lines so gradually flowed and moved.

Considering this way, it is convincing that if one is connected, other nerves will be connected in a chain reaction. Because the blue nerves increase all at once. And it is understandable that the thin nerves that are easy to connect are connected at first, and the thick nerves that are the most difficult to connect are finally about to be connected. It's consistent with what I used to say, "Nerves feel like fluid flowing and moving." And, perhaps by the way, this blue nerve (and of course green) may be sweat itself.

And, before getting into this state, it took one and a half years on the left side and 16 and a half years on the right side since undergoing reversal surgery.

I think as follows about the reason why the left side was connected in a so short period of one and a half years.

I also underwent a lumbar sympathetic ganglion block before ETS operation.
And at the preoperative meeting for reversal surgery, my doctor Timo Telaranta said to me that he intend to use the calf nerve of my left foot as donor because I am right-handed, but actually he used my right foot.
I think that the effect of the lumbar sympathetic ganglion block on the left foot will remained. Therefore, it is possible that all the nerves going to the left foot had accumulated in the abdomen so the force pushing to the upper body was more strong.
In other words, I think my compensatory sweating was particularly terrible, as I had stopped not only from the chest to the top but also from the waist to the bottom.

This is just a possibility. It was really terribe compensatory sweating, so the lumbar sympathetic ganglion block should never be done for the purpose of recovery after reversal surgery.

Another reason to support this idea was that a Finnish doctor (Telaranta) had once recommended armpit botox along with reversal surgery.
Though the applicant declined this optional treatment because it was a different expense, there may be a way to seed up the nerve movement by adding sometiong under the arm.

I hope that this issue will be solved and nerves will be reconnected more sooner.

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ETS手術を受けようという人へ④ETS手術を受けた後のハネムーン期間

ETS手術を受けた後、代償性発汗をはじめとする副作用が年を追うごとにひどくなることはよく言われていて、そのことは私のブログでもまとめています。
反対に年を追うごとに代償性発汗が軽減されるというのは全く聞いたことがないので（それこそ手汗が戻ったとしても）、基本的には「悪化していくもの」と捉えて良いと思います。

海外のあるサイトでは、このことを「ハネムーン期間（honeymoon period）」という言葉で紹介していました。
多くの患者は「ハネムーン期間」を経験しますが、そこでは負の症状がないか、ほとんどありません。この期間は、数か月から最長で数年に及ぶことがあります。

そしてもう一つ、次のようにも書かれています。
手術の多くの肯定的なレビューは、まだこの「ハネムーン期間」にいる患者から来ています。

裏を返せば、ETS手術の最終的な満足度を知るためには術後数年に及ぶフォローアップが必要ということになります。しかし、病院の労力や患者の協力といったさまざまな条件により、それを正しく行えている病院は存在しないと言っていいと思います。そして今でもETS手術を行っているような病院というのは、これからも続ける根拠が欲しいでしょうから、患者の満足という結果を得たいがために短期のヒアリングしかしない可能性もありそうです。そうすれば、必然的に高い満足度を作ることができます。
ハネムーン期間が過ぎた後で起きた致命的な副作用を相談しに行っても、ETS手術医は「それはおそらく年のせいでETS手術のせいではない」と言って関連性を認めなければいいわけです。

タイトル「ETS手術を受けようという人へ」は現在５部作となっています。
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2020年6月21日日曜日

ETS手術を受けようという人へ③TwitterのアンケートやChange.orgの署名

先日Twitter上でETS手術の結果に満足しているかっていうアンケートを取っている人がいました。

54票のうち、約1/3がETS手術に後悔しているという結果になっています。
もちろん手術を受けて大満足っていう人は、仮にいたとして、そもそもTwitterには来ないのでは？ということも踏まえるべきですが、それでもそこそこの人が後悔していると考えて良いと思います。
ちなみに④の「後悔している」がハイライト表示されているのは、私が選んだ回答だからです。


それと海外では署名サイト（Change.org）での署名活動も行われています。

Treatment for Sympathectomy (ETS/ELS) Patients
https://www.change.org/p/requesting-treatment-for-sympathectomy-ets-els-patients

署名数は2020.6.21現在で303人と非常に少ないんですが、コメント欄には「副作用で何もできなくなった」、「孫がうつ病になって自殺した」、「甥が手術を受けて８週間後に自分の命を奪った」、「人生を台無しにした」など、かなり辛辣なことも書かれています。

この署名は変革とか要望といったことは特に書かれておらず、署名の提出のみとなっているようです。でも提出先は79病院となっていて、「University of Tokyo Hospital」、「Kyoto University Hospital」、「Institute of Medical Science University of Tokyo」といった日本の病院も含まれています。


2020.9.20 追記
署名サイトの署名は現在500人を超えてます。500人を超えたら医療機関に署名を送るという起案者のコメントが ETS & Reversal Discussion Forum にありました。なので、ひょっとしたら既に日本の大学にも送付されているかもしれません。
詳しくはコメント広場の コチラ。

タイトル「ETS手術を受けようという人へ」は現在５部作となっています。
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2020年6月20日土曜日

About getting tired more easily after taking ETS surgery

This article is a translation of an article written in March 2013.
I went jogging today.
It's getting warmer recently, so I started it from last week.
My jogging course is about 12km, and it takes about an hour and half to run.

I run at night and it's still cold at night, so I didn't sweat much. I just felt wet when I touched my back, and no sweat was dripping though my shirt was wet.

It's just started from last week, so it's hard to say clearly, but I feel easier than ever to move the body. If running a long distance, my knees begin to hurt and wobble of course, and it's just the same as before. But I feel that when exercising I feel less heavy and less pain.

Instead, the feeling of nerves flow is intense.
In terms of rehabilitation after reversal surgery, I think it is better to run without overdoing, leisurely, and frequently taking a rest, and do so. But when stop for a moment, the feeling of nerves flowing from my shoulders to my arms is very intense.
However, I feel like mass of my nerve is getting out of my abdomen through my shoulders to my arms, so my abdomen and legs are getting easier.

Now I am thinking as follows.
I think that when the sympathetic nerve becomes active during exercise, the sympathetic nerve is actively generated in the spine (that is, the spinal cord). I imagine that each spinal cord on the spine works like a bicycle pump.（See Figure 1）
Figure 1. The area that become active when nervous or excited.

And I think that the generated sympathetic nerves are pushed to the left and right and are transmitted to the sympathetic nerve trunk, and then flow to the whole body through the sympathetic nerves stretched throughout the body.（See Figure 2）
Figure 2. The pathway that is transmitted when the sympathetic nerve becomes active.

I think that if such sympathetic nerves are transmitted too much, the body may give up. That is, it is the state "completely exhausted". Originally the sympathetic nerves actively created in the spine are evenly transmitted to the whole body, so each part accepts and processes a small portion, but because ETS surgery upsets the balance of the flow up and down, the abdomen and lower half of the body where the sympathetic nerves transmit excessively, had began to "give up" soon.（See Figure 3）
Figure 3. The area that the upper and lower balance was changed by the ETS surgery.

I think that compensatory sweating, which increases sweat on the abdomen and back, has the same mechanism.


I used to think that at the end of the move to the upper body through the connected parts of the chest nerves, the nerves are fully connected, but recently the way of thinking has changed a little. It wasn't that I was wrong, but there are two ways to recover. One is to recover rapidly by moving backwards, and the other is to recover in a smooth flow. This recovery with smooth flow means like this...

I think that the sympathetic nerves are generated in the spine whole day in the daily life. When in the hot place, when nervous/excited, and when exercise, it's especially intense. The flow of sympathetic nerves that are temporarily activated and generated is still different between the upper and lower parts and I think that it's because the myriad nerves in the upper body are still withered. It's connected little by little by the force of being pushed away forward when in the hot place, when nervous/excited, and when exercise, gradually regaining the smooth flow of the nerves.

However, it is difficult to understand how far recovery has progressed just by feeling the calm flow of normal situation.
Possibly, it may be that the feeling of this gentle flow does not mean the recover as much as it feels to be moving, but is being squeezed/withered because there is not enough flow to the hand or head...
During the summer, even though I was at rest, it became very active and often had a backflow from my abdomen to my shoulders and arms in daytime, but during the winter, it doesn't so active. This seasonal influence may be causing it.

I still feel that the flow of nerves on my shoulders and armpits is uneven, and often makes a cracking noise.
And today, while I was running, sometimes my left temple made a squeaky sound conforming with my steps.

The idea that various places that are withered are connected little by little, and my recovery can be completed if a smooth flow can be restored, has not changed at all.


※I used the figure described on the Autonomic nervous system page on wikipedia site.

※The contents here are based on "the feeling I have received since I took reversal surgery", "a little what I have investigated", and "some of my assumption". Therefore, it is not known whether everything is correct or not, and there may be points that lack consideration. What you need to know in advance is that I am not a doctor but a patient, and that this is not a medical explanation.
So I hope you read this for the question and hope how much I will recover by taking ets reversal surgery.
And my thoughts may be changed in the future depending on facts and conditions that I do not know. This is my idea at the moment.

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2020年6月17日水曜日

About the "feeling of nerve flow" that I feel after ETS reversal surgery #12

This article is a translation of an article written in November 2017.

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I've been drawing and writing for about three years about the feeling of nerve flow that I feel, but now it's a little different, so I'd like to show a new one.

This is the figure shown in "About the "feeling of nerve flow" that I feel after ETS reversal surgery #03" I wrote about three years ago.
At that time, I felt a lot of nerves flowing toward multiple people, centering on one point of my chest.
Both hands were numb.

Three years have passed since then, and now I haven't felt my chest so much, and I just feel it like this.
It is changed so that the dotted line part flows quite strongly.
My hands are as vigorous as before, and my right thumb is quivering.
Also, the way of feeling depends on my posture, and when I lay down, I sometimes feel the flow in the entire lower arm.（Though I feel in both arms, right arm feels much stronger.）
Even if it takes much time, there is a considerable left-right difference.（※Refer to リバーサルを受けて16年の現在の左右差, but I'm sorry, it is written in Japanese）。

The gradual increase in the flow in this dotted line indicates the signs of recovery.

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2020年6月16日火曜日

About the "feeling of nerve flow" that I feel after ETS reversal surgery #11

This article is a translation of an article written in March 2015.

It's March, and it became a little warmer.

I tend to get sick in seasonal changes every year, and this year is also the same, so I spent most of my stay at home weekend.

The nerves flowing to my right shoulder and both arms are much stronger, and I feel the flow like an hourglass.

Sometimes my shoulders are pulled.
Sometimes it flows in to the left hand.
Sometimes it flows into the tube in the right arm.
Sometimes I feel it flowing inside the head and scalp.

The part that was cracked in the shoulder sometimes feels lodged, but mostly flows smoothly.

Recovery of nerves connected by ETS excision with reversal surgery means that it isn't extending and reproducing little by little but there are hundreds or thousands of withered and bent parts and it will regain the flow one by one from small parts easy to connect.
The shoulder part where the thick tube has withered and bent can not easily recover the flow, but gradually will begin to flow smoothly with the help of the sympathetic violent flow when sweating, nervous or exercising.

Though I lay down at night yesterday, my nerves were so intense that I couldn't sleep until dawn.
Today, I felt that all the nerves below the chest on my abdomen flowed up.
And after taking a bath, a lot of sweat came out like a squirt.
The nerve flow is likely to become intense.

My hands were so dry today that it felt strange.
It's still the case now, but it's chapped, and it is like when I went up to the pool.

Now, 13 years and 2 months after ets reversal surgery, it takes a tremendous amount of time to recover even after taking a reversal surgery.

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【番外編】自作シャツクールとケトプロフェンテープ

お散歩で汗をびっしょりかくようになってきたので、自作シャツクールを作ってみました。
材料は去年の10月に買ったものです。（その時の日記は コチラ）
L-メントールはずいぶんと揮発してしまってますが、まだ残ってます。

エタノールは水で薄めるのですが、どのくらい薄めればいいかは明確じゃないので、とりあえず３倍に薄めることにしました。
これにL-メントールを６かけ程入れて、水道水を満杯まで入れました。

できあがったものをTシャツに吹き付けました。

それと腰痛で処方されてる湿布（ケトプロフェンテープ）。
スースーするので、外出時に背中に貼り付けると冷感が得られてものすごく快適です。それによるここ最近の汗の軽減はあるように思ってます。※つまり冷却用に貼り付けるのもアリなんじゃないかと、ちょっと思いました。

でも、腰の痛みはまだ続いてます。

レントゲンを撮ったところ、骨はとても良い状態で原因不明なのですが、リバーサルにおける神経の変調で筋肉が炎症を起こしてる可能性もあるんじゃないかと、だからいずれ治まることを、そしてそれが治った暁には神経の移動も進んで代償性発汗が減るまでを、祈っています。

自作シャツクールの実際の使用感や薄める濃度については、使ってみながら近くレポートする予定です。
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2020年6月15日月曜日

About the "feeling of nerve flow" that I feel after ETS reversal surgery #10

This article is a translation of an article written in July 2014.

When I was taking a bath today, I felt the nerves in my chest flowing violently.

Recently, I used to feel like an hourglass running down in my shoulders, but today it was a more intense movement like bubble popping in my chest.

This wasn't the first time today, but it felt the same last week.
Because it's happening after going to the pool, so it seems that this is happening because due to exercise the flow after that has become intense.

It is the white area in this figure that gave me the feeling of nerves flowing like bubbles. It is the central area of the chest with the nipple height, close to the heart.

Though I had difficulty breathing or had panic symptoms until now when I felt the movement of nerve flow extreme violently, I think that the various changes in the sympathetic nerves that occurred near the heart in this way have affected it.

Now that I'm regaining a strong flow overall, I think I can avoid getting panic symptoms like I couldn't breathe, I had a lot of sweat, or I had a white field of vision like before. However, as it is today, it became a bit stuffy at this time.

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2020年6月13日土曜日

About the "feeling of nerve flow" that I feel after ETS reversal surgery #09

This article is a translation of an article written in January 2014.

I would like to write about the recent feeling of nerve flow.
First of all, last Wednesday, I felt a terrible cold in my whole body. I was wondering if I had a cold or flu, but I feel that it was caused by the feeling of sympathetic nerves flow.
When I was lying down to sleep that night, I felt that a nerve around my left shoulder newly connected and flowed. This is like a nerve going to the left shoulder via the right shoulder. There was only one reticular flow that wrapped the left shoulder, but then the nerve flow was stronger in both shoulders and arms.
In addition, In addition, the lower part of the left eye also has a twitching movement, and feels that nerves flow to both temples and the area of the earlobe. The earlobe was often red and warm with the cheeks, for example, when I was in a place where heating was effective or when I entered the Kotatsu stove. But, after ETS surgery, it disappeared and turned into compensatory sweating.

I feel the flow of nerves in my arm very strongly and clearly.
Using the figure in the Median nerve of Wikipedia, there is one yellow nerve that branches from around the wrist and flows to the thumb, index finger, middle finger, ring finger, which the place where I feel the flow of nerves right now is.
This broken down point is around from the ribs to the outside of the shoulder, and from there the flow is smooth. It is an image that the shoulder part is blocked like a dam.

I think this is a very thick nerve.
I checked this nerve, and it was written that the median nerve is about 2 mm thick. It is as thick as the earphone cable...

I still feel nerves flowing, so I think that recovery will continue until the 2mm nerves are filled. I don't know how much my current recovery situation is. But if it will be filled in this way, I expect that the numbness of the hands that accompanies the nerve flow will disappear, and that the sweat of the hands and arms will also increase.

I think that ETS surgery cuts off the nerves at the base of the chest, causing these nerves to withered, so I can not agree that ETS surgery is the correct approach to stop hand sweat... I can agree if treatment can be achieved by successfully reducing the sympathetic nerve flow to the bare minimum, for example by stopping around the wrist or palm, but regarding the current technique that divides the sympathetic nerve of the chest, changes the upper and lower balance of the sympathetic nerve of the whole body, and stops the sweat of the hand by withering the sympathetic nerve toward the palm, I never think it's the right way to cure hyperhidrosis at all.

For this reason, now I think ETS surgery should not be performed dut to to hand sweat in any circumstances.

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2020年6月11日木曜日

梅雨入りと腰痛と私（なんじゃそりゃ）

今日関東地方も梅雨入りが発表されました。
発表されたのは今日の午前11時のことで、ちょうどその頃私は腰痛のために整形外科を受診していました。

先週もらった飲み薬が切れてしまったので、それをもらいに行ってきました。
悪化してるわけではないもののあんまり良くなっていないと伝えた所、飲み薬だけじゃなくコルセットと貼り薬も処方してもらいました。
コルセット：Tシャツの上から装着。マジックテープで留めるタイプ。
貼り薬：ケトプロフェンテープ（消炎剤）
飲み薬：ソレトン錠（炎症を抑える）、レパミピド（胃薬）

コルセット、試着はしてみたけど暑くて窮屈です。しかも梅雨入りしちゃって汗ダク必死。。。
コレを付けて外の草むしりとか恐ろしすぎます。（たぶんやらない）

貼り薬、背中なので貼りたい所にしっかりとは貼れないです。適当に後ろに手を回してとりあえず付いた所で広げて貼り付けるのが精いっぱい。
だけど、すごくスースーして気持ち良いです。

とりあえずこれで様子を見てみることにします。

ちなみに「部屋とYシャツと私」は深い愛情を歌っているのですが、「梅雨入りと腰痛と私」は不快な恐怖を訴えています。
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2020年6月8日月曜日

About the "feeling of nerve flow" that I feel after ETS reversal surgery #08

This article is a translation of an article written in November 2013.

I also jogging today.
I ran the same place at the same time as yesterday.

I started to sweat a little earlier than yesterday and the sweat from the right side of my face dropped today, but overall, it was as usual.

After running and after taking a bath, I checked the temperature of various parts of my body by hand.

At first, The front of the thigh and the calf of the left foot had heat the most. The next hottest area was the lower abdomen and chest, and the stomach and back were not so.
On the other hand, with regard to the upper body, heat was generated around the back of the neck and the forehead, both shoulders, and both arms. The temperature of the arm still has a left-right difference, and the left side has more fever.

Perhaps the reason why my legs were feverish most is that the legs were the places that moves the most when jogging. And I think that the sympathetic nerve acts on the fever in each part of the body, that is, the heat is carried by the nerve flow of the sympathetic nerve.
This is because I have often felt the movement of heat from my back, through my neck, and to my head along with the feeling of nerve flow.

※About the fever, I think the following article will be helpful. Sorry, these are written in Japanese.
・今日の神経の流れる感触（9/27）・・・Diary of September 2013.
・今日の神経の流れる感触（8/28）・・・Diary of August 2013.
・今日の神経の移動する感触（10/14）・・・Diary of October 2012.
・今日の神経の移動する感触（9/29）・・・Diary of September 2012.

I think that the fever in my abdomen and back after taking ETS surgery is the heat that I could not send to my upper body. I think the reasoning is the same: the ears get red and hot when feeling embarrassed, the face burns when heated, and the back gets hot and sweats much after ETS surgery.
I think that I took ETS reversal surgery and the nerves in my upper half of the body were connected, so that my fever could escape to my upper half. That leads to fever in the neck, forehead, shoulders and arms.
This fever was caused by exercise in the cold, so I think it's a different reason from the so-called "hot flashes". Hot flash is what happens when doesn't sweat in hot places.

I think that though I feel that my tiredness has obviously decreased this year, this is for the same reason, and since the nerves flow to the upper body without staying in the abdomen, the burden on the chest was reduced.

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2020年6月7日日曜日

About the "feeling of nerve flow" that I feel after ETS reversal surgery #07

This article is a translation of an article written in November 2013.

Though it hasn't occurred recently, I sweated today caused by the feeling of nerve flow.
In the daytime, I felt that the floor was hot, and sweated until my back got wet.
In the evening, my head was faint, and I was feeling intense nerve flow on the train back home.

I exercised last weekend, which may have been affecting its symptom. At that time, I felt strong nerve flow all the while running. Therefore, I think, the nerve movement from abdomen to the upper side progressed, and as a result, a new place (on the lower side) was ready to move...


It's hard to understand, so I'll explain it using the diagram on the "Connecting the sympathetic trunk to one by ETS reversal surgery".

I have described many times about the feeling that nerves flow and move, but I feel that the nerve on the lower side moves and flows little by little while cutting off some part.
※Japanese annotation written above means "The location varies from day to day".

I think about the reason why I sweat like today is that it is when the some nerve starts to move, for example the blue part starts to move or the red part starts to move... In other words, it is when the nerve begins to flow back against the original flow of spreading toward each part. Thanks to much progress of the movement of the nerve, it is now lower of difference in pressure between upper and lower of my body, so I don't seem to have panic symptoms. This is the structure of my panic symptoms that I think.

Then, when the nerve in that part has completely moved, another new place starts to move. I'm repeating that over and over again.

I think this movement is accelerated by exercise.
Therefore, I think that the place where it was flowing finished to move quickly, and today, another place started to move again.

This also applies to the diagram of nerves that I use many times.
Though the nerves are innumerably branched, it seems that this movement of the nerve associated with this panic symptom occurs repeatedly at the same place many times. There are many times that it occurs in a blue place, then in a red place, and then in another place, then it occurs again in a blue place. I'm sure there's a clogged place that's hard to move, and I'm wondering if these things are happening there over and over again. If so, it's possible that a panic symptom that was awful at the beginning could be smooth by repeating over and over, and now it's easier to pass by. I am thinking such...

Today I wrote my thoughts about what my panic symptoms are relieving as I recover after reversal surgery.

【Attention】
This is a summary of my thoughts based on what I have felt since I took ETS reversal surgery. So I don't know if it's actually correct or not.
I think that panic symptoms may be caused by this kind of mechanism, but I have not read anything that can be helpful somewhere. It is my personal opinion.

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2020年6月6日土曜日

汗わきパッド購入

Amazonで注文していた 汗わきパッド が届きました。
１箱で100枚入り1480円だったのですが、2000円以上買うと配送料410円が無料になるので２箱買っちゃいました。
他の商品よりもこれが一番割安なんですが、その代わり、こんな感じの簡易包装になってます。
ちなみに今回買ったのはベージュで、白と黒もあるみたいです。いずれも上のリンクからたどれます。
※あと、amazonのシステムについても不満があって、それについてはこっちの 日記ブログ に書いてます。

今日も公園に散歩に行ったんですが、脇汗が一番に気になっています。
※実際にはこの上からシャツを羽織ってるし、散歩ならまぁ大丈夫なんですけどね。

イオントフォレーシス装置のDermadryを使う手もあるんですが、今年は神経の変調をいろいろと感じてるためパスする予定です。ということで汗わきパッドを注文したのでした。

今年はこれで乗り切る作戦です。
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2020年6月5日金曜日

About the "feeling of nerve flow" that I feel after ETS reversal surgery #06

This article is a translation of an article written in October 2013.

I'd like to write my opinion about the following parts written on the Endoscopic thoracic sympathectomy page of Wikipedia.

Exact results of ETS are impossible to predict, because of considerable anatomic variation in nerve function from one patient to the next, and also because of variations in surgical technique. The autonomic nervous system is not anatomically exact and connections might exist which are unpredictably affected when the nerves are disabled. This problem was demonstrated by a significant number of patients who underwent sympathectomy at the same level for hand sweating, but who then presented a reduction or elimination of feet sweating, in contrast to others who were not affected in this way. No reliable operation exists for foot sweating except lumbar sympathectomy, at the opposite end of the sympathetic chain.

I have been explaining the feeling of myself using the phrase of "feeling of nerve flow" several times using diagrams. In some diaries on this blog, it is explained in the text. （"it flows toward the back of the right shoulder, and flows to the entire back, to the left shoulder, to the left palm, and to the left temple through the left side of the back of the neck." or "it is heading from the yellow area to the left shoulder along the back of the neck." and so on）

Of course, I still feel the feeling of nerve flow in such places, so I will add it in red  in the figure.
The dotted line in the figure is felt on the back side of the body.

When the right hand is numb, the left hand is usually numb at the same time. If the green part of the figure is blocked interruptedly so numb is set up beyond that, I think it's correct that numbness are occurred simultaneously in both hands.
And It also flows toward the back. If it can reach the foot beyond that, I think that it also makes sense for some people who took ETS surgery to stop sweating their feet at the same time.
If they worry about sweating on their hands, it means that their nerves are already hypersensitive, so the extended nerves that have reached their feet have also overreacted, resulting in hyperhidrosis of their feet. However, if the nerve of another path was sweating the feet, then it would not stop, but rather the sweat on the feet would be stronger...
I think this is an "individual difference".

Another thing I was interested in is the following description.
The most common area targeted in sympathectomy is the upper thoracic region, that part of the sympathetic chain lying between the first and fifth thoracic vertebrae.
I think it means three sympathetic ganglion between T2 - T4, so, for example, even if the procedure was to eliminate the T4 sympathetic ganglion, this article should be considered applicable. That is, though it may be told "If low-level elimination, it is safe.", though though it may be correct that it is less fatal side effects than T2 elimination, it's worth understanding that some side effects still occur as described in this article, and some people are unacceptable for their symptoms.

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2020年6月4日木曜日

汗＆振戦＆眠気＆発熱＆腰痛

ゆうべは夜中遅くまで扇風機をかけてました。
もうじき２４時間フル稼働で冷房を使うことになりそうです。

今日は曇ってたけど、気温は27℃にまでなってました。
公園まで母を車椅子で押して行ったのですが、ベンチに座って休んでる時に、お腹から生暖かい汗が流れ出ました。27℃なら調子が良ければ汗は出ないですむかもな温度ですが、車椅子を押すと普通に歩くよりも力が入るから汗は出やすくなるかもです。

午後は冷房をかけ、横になって過ごしました。
手の振戦は激しいし、そして眠気が襲ってきて軽くひと眠りしました。
夕方には振戦は治まったのですが、今度は背中が発熱してきました。背骨のある中央部で、内側から熱が出てる感じでした。室内は冷房が効いてたので腕やら足は涼しかったのですが、背中だけが熱くて不快でした。

薬も飲んでるのですが、腰痛も続いています。
痛む部分は、背中の中央だったり、側面だったり、ももの付け根あたりだったり、と日によっても違うようなのですが、今日は背中の発熱してるあたりでした。
やはりこの腰痛は神経の変調のせいなんだろうなと改めて思いました。

晩ご飯を作る時はまた代償性発汗との格闘です。
ガスコンロ１つだけならまだましですが、３か所全部を一度に使ったらもうシャツがべったりになります。
昼のお散歩は梅雨になって雨が降ったり真夏になって熱中症の心配が出たりしたらやらないかもですけど、それまでしばらくは昼のお散歩と晩ご飯を作る時の２度の発汗がデフォルトになりそうです。

もちろん神経の流れる感触も激しいです。
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2020年6月3日水曜日

今年の代償性発汗は多めに出るのかもしれない

今日は母の眼科の受診のため、母を車いすに乗せてトコトコ外出してきました。
その足で、帰りがけにスーパーでお昼ご飯を買い、公園で食べてきました。

Tシャツを下に着て、上にもう１枚羽織る様にシャツを着てたから、汗染みの心配は全くなかったのですが、脇、お腹、背中全体から汗が出て、脇はじっとりと、お腹と背中もぴたっと貼り付くぐらいに濡れました。今年一番の発汗量でした。

そんな感じで２時間ほど外出し、家に帰ってからは冷房をずっとつけてたのですが、全然汗が引かなかったです。流れるまでの汗にはならなかったので発汗量は少なかったのですが、じとーっとした状態が夕方近くまでずっと続いてました。

今年は不調ですね。。
日中強烈な眠気が出るし、腰痛は起きてるし、油系での味覚性発汗も出るし、（ちょっと出方の違う）じっとりとした代償性発汗も出ています。
私は介護生活がまだまだ続きますが、無理せず過ごそうと思います。
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About the "feeling of nerve flow" that I feel after ETS reversal surgery #05

This article is a translation of an article written in October 2013.

I sweated on a commute train this morning.
I started sweating after I got on the train, and it continued only first 10 minutes. In the meantime, my whole body (especially chest, abdomen, and back) was hot. Although there was a wind, without feeling it was cool, I sweated on my back.
After that it was as usual. Soon after instantaneous large amount of sweat, it stopped, and by the time I changed trains and got off the second train, my wet shirt was completely dry.

Not only that, the same things occurred after lunch and in the afternoon.
As it was likely to rain in the afternoon, it may have affected. This is because the air  pressure drops when it rains. Then I was sweating, feeling the nerves in my right shoulder flowing greatly. At that time, I sweated only from the right half of the abdomen and back, not the entire body.

I've been sweating and numbing my hands every day since I returned from my trip last month. I feel that my nerves have become easier to move because of my trip.

As I have written several times when the nerves flow, I feel that it moves like a torrent from the area under the chest. Though I wrote several times that crack sound occurred in my shoulder at that time, I'll explain about that a little more briefly.


【Attention】
The contents here are based on "the feeling I have received since I took reversal surgery", "a little what I have investigated", and "some of my assumption". Therefore, it is not known whether everything is correct or not, and there may be points that lack consideration. What you need to know in advance is that I am not a doctor but a patient, and that this is not a medical explanation.
So I hope you read this for the question and hope how much I will recover by taking ets reversal surgery.
And my thoughts may be changed in the future depending on facts and conditions that I do not know. This is my idea at the moment.


First of all, about the sympathetic nerve of an ordinary person, the nerves of the nodes that are basically stretched all over the body are connected in this way. And in daily cycle, it flows violently when exercise, and it hardly flows when calm or sleep at night. （※Refer Fig. 1）
Fig. 1

However, the nerves that flow to the upper body after ETS surgery have diminished dramatically, so I think this has made the flow thinner. （※Refer Fig. 2）
Fig. 2
※The state of Fig. 2 is explained in more detail in "Connecting the sympathetic trunk to one by ETS reversal surgery".

As a result, I think that some nerves have finally broken down (or pressed by around tissues, etc.) and withered. （※Refer Fig. 3）
Fig. 3

The part where cracking sound is emerging on my shoulder right now is the green area in this figure which I have already used several times.

The green part on my right shoulder is still in the state shown in Fig. 3 even now.
When I go out in a hot place, when I feel a change of atmospheric pressure due to a train or rain, or when I consciously put my strength on my back shoulder, I think, the nerves are flowing temporarily in the state of Fig. 1, from abdomen to upper body.
Repeating the state of Fig. 1 and Fig. 3 over and over again and again, so I feel that the nerves of my hand and head are being filled with it.
I think that when it is completely filled, it stabilizes in the state of Fig. 1 and will be in a state of being "connected".

By the way, I am not so confident that the reason why compensatory sweating worsens year after year after ETS surgery is that the opposite thing of what I explained above is probably happening.
In other words, the nerves in the upper half of the body after taking ETS surgery are in the state shown in Fig. 2, and the nerves in each node are as shown in Fig. 3 while passing through every summer and winter.
When this happens, the nerve flow is interrupted, so when I am in a hot place, when I feel nervous or fear, or when the air pressure drops due to  riding a train or being rain, etc, the sympathetic nerve becomes active and temporarily connected, so violently flows, therefore panic symptom may occur...
It's just my opinion, but I think that way.

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2020年6月2日火曜日

オリーブオイルで味覚性発汗

今日の晩ご飯でこのサラダを食べた時、味覚性発汗が出ました。
汗は顔全体で出たんですが、右半分の方が若干多く出ました。

お酢、オリーブオイル、それとにんにく、塩を混ぜて作ったオニオンドレッシングが乗っかってます。お酢も味覚性発汗の原因になりやすい調味料ですが、私の場合効いたのはやはりオリーブオイルです。

昔も（オリーブオイルの入った）ペペロンチーノのパスタとかを食べると、てきめんに味覚性発汗が出てました。
最近は油関係のものでは味覚性発汗は出なくなったと感じてましたが、今日はかなり出ましたね。。。

ネットで調べても、オイルが元で味覚性発汗が出るというのは見かけられなかったです。
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2020年6月1日月曜日

腰痛で整形外科に行ってきました

おととい腰痛が起きてることを日記に書いて週末様子を見ていましたが、良くも悪くもあまり変化が無かったので、整形外科に行って診てもらってきました。

レントゲンを撮ったのですが、背骨はとても良い状態で骨に問題は見当たらないとのことでした。恐らく筋肉の炎症だろうとのことです。

「コルセットを使いますか？」と聞かれたのですが、とりあえずもうしばらく様子を見てからにしますと断りました。暑いし窮屈だし、多分辛いからですね。。。薬は「ソレトン錠」（それと胃薬）を処方してもらいました。炎症を抑え鎮痛作用のある薬で、腰椎症で良く処方されるみたいです。ってことは診断名は聞いてないけど恐らく腰椎症なんじゃないかと思います。。

思い当たる節は特に見当たらないです。今は親の介護中心の生活をしているんですが、手引きでトイレや食卓に連れていくことはできていて、そこまでの重労働ではないです（昼間でも真夜中でも２～３時間おきに連れていく必要はありますが。。）最近は車いすを使って毎日公園まで散歩に連れて行ってますが、折り畳み式のコンパクトサイズなのでハンドルの高さが低く中腰になるけれど、原因はそれじゃないんじゃないかと思うんですね。。。

やはりリバーサル後の回復の影響じゃないかと思ってます。
リバーサル後の腕の筋肉疲労感は今までに何度もありました。今回は腰ですが、神経の流れが変わることによる変調が筋肉に作用して、疲労感や炎症を引き起こすんじゃないかと思うのです。

ソルトン錠の効果を調べた所「体内で炎症などを引きおこすプロスタグランジンの生成を抑え、炎症や痛みなどを抑え、熱を下げる薬」とのことだったので（※日経メディカル処方薬辞典 参照）、これで痛みが引いてる間に過ぎ去ってくれるのを祈ってます。
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About the "feeling of nerve flow" that I feel after ETS reversal surgery #04

This article is a translation of an article written in July 2013.

Today I would like to write about changes in the feeling of the nerve flow on the torso side.

The other day, I wrote about the feeling of nerve flow on the torso side on the page of "About the "feeling of nerve flow" that I feel after ETS reversal surgery #02". I explained the following:
The nerves inflated on the abdominal side bordered the chest didn't evenly move to the upper half of the body as if the balloons deflated. Although there are various differences depending on the day, on the all, "first around the thighs, then around the lower part of the abdomen, then around the chest", nerve are getting decrease like cutting down.

It took more than 10 years, so it was not all cut down regularly. That is, after it occurred in the back of the right chest, then in the lower left abdomen, so there was no regularity. But that is because the nerves are infinitely branched like roots of trees, and I think that it was because each of the tense nerves flowed down to the upper body so that one by one could come out one by one..
Frequency increasing to occur on the upper side gradually, it often happen around my chest recently. And maybe the whole inflated state could have more or less loosened, and the way of decreasing recently has changed a little.

Now, I feel that the nerves from my chest to my stomach to my legs are evenly reduced like a balloon deflates. To feel like that, sudden sweat (momentary large amount of sweat with no sign) happens in small increments. It occurs a few times a day, and 'bleeding sweat on the whole belly and back' and 'feeling of nerve flow' are repeating alternately. It can also occur on my feet. I have written this thing on this blog with the tile of "今日の神経の流れる感触" (it means "today's feeling of nerve flow")
Though, I think, it's because there is no moment when my nerves have intensely flowed like landslide, lately I'm not suffering from panic. The following set of symptoms is gone. a) The feeling suffocating with deep breath immediately before  nerves intensely flow like landslide. b) After that, lasy sweat and sense of fear, which occur with feeling like about to explode. c) And slump down into a chair and wait for the nerves that flow backwards and violently flow toward upper body to settle down. I think that this my unique panic syndrome is the symptom that occurs when one of the thick inflated nerves deflates and regurgitates to the upper body.

This is the current idea based on the current recovery process. If I feel differently, I may think differently. At that time, I will write again.

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